Our Core Values

Respectful

We are welcoming and supportive. We provide the opportunity for people to socialise, share their experiences and learn from one another.

Inclusiveness

We are welcoming and supportive. We provide the opportunity for people to socialise, share their experiences and learn from one another.

Empowering

We encourage people to take personal responsibility and making positive changes in their lives by providing opportunities, developing their talents, and helping to build their confidence and self esteem.

Partnership and Collaboration

We recognise the importance of working collaboratively with people who share our vision, to design, deliver and evaluate our services. We work jointly with other organisations to enhance our capacity to achieve the best outcomes.

Things to note about us

We are dedicated to improving the health and spirit of people affected by sickle cell disease so they could live normal and productive life.

Our Mission is to educate people about the causes of sickle cell disease and its prevention as well as support families and children with sickle cell disease and other health conditions.

Our vision: To ensure that sickle cell patients have better chances in life. Formed by those who have first hand experienced of the devastating impact of sickle cell disease, including parents and health professionals.

What You Need to Know

Sickle cell anaemia is a disease passed down through families. It is an inherited condition of the blood and it is considered the most common genetic disease. It is a group of disorders that affects haemoglobin. Haemoglobin is the protein, which carries oxygen to the tissues.

Not contagious

Sickle cell disease is not contagious, but is acquired at birth. It occurs when a child inherits two sickle haemoglobin genes, one from each parent.

Caused by a genetic abnormality

The disease is caused by a genetic abnormality in the gene for haemoglobin, which results in the production of sickle haemoglobin.

Improved life expectancy

Life expectancy for patients with Hb-SS has increased to a median of 45 years and for HbSC patients to 65 years, a significant improvement from 14.3 years for Hb-SS 3 patients.